Don’t Tell Anyone! Donor Privacy Issues and Trends

APRA Virtual Seminar Replay
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Presenter: Kate Fultz Hollis

Session Description
As almost any activity in our profession can change quickly, reviewing and understanding how to continuously maintain confidential data about our donors is essential. This session will discuss current and future trends in ethical practices: How can we maintain donor privacy?

This session will cover:

• Professional ethical policies and information about institutional ethical guidelines. The APRA Ethics Statement, the CASE Statement of Ethics and the Nature Conservancy’s Web site Privacy Policy are a few of many policies referenced to assist in guiding best practice development.

• FERPA, FOIA, HIPAA, Gramm-Leach-Biley Act, Sunshine Laws — within this alphabet soup of acronyms, there are many legal constraints on constituent data that this session will translate.

• How to handle when a donor's personal data is used improperly. An example of this situation will be shared  — including the surprising end to the story.

• The Ethical Crystal Ball — ideas on how to maintain privacy and ethical considerations with the high volume of data available. 

Speaker Biography
Kate Fultz Hollis has worked at universities for over 25 years and has been focused on medical science development since 1986. She started her research career at Harvard Medical School in Boston and learned her skills from current APRA board member David Eberly. She is one of the founding board members of the New England Development Research Association (NEDRA) and works at the University of California, Los Angeles. She has been a frequent speaker for APRA on research skills and ethical issues.